Living With Fibroids

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Did you know the vast majority of American women will probably get uterine fibroids by age 50? But despite being common, there’s not a lot of talk about fibroids in the national conversation on women’s health.

Women trying to understand their fibroid diagnosis and treatment and management options often get incorrect information, which contributes to stigma about fibroids and can keep people who have them from reaching out for help.

That’s why we’re excited to have joined forces with
The White Dress Project to help women living with fibroids feel supported and empowered during their journey. As a nonprofit organization primarily made up of women who’ve traveled through fibroid journeys of their own, The White Dress Project is uniquely positioned to partner with us to educate, empower and support people who are managing life with fibroids.

Through our collective work, we’ve developed resources to illustrate life with fibroids, educate the community, encourage self-advocacy and strengthen the patient-healthcare provider relationship and interaction.

We invite you to explore our inspiring and educational content below.

This resource has been created with support from Myovant Sciences and Pfizer.

What’s Normal When It Comes to Menstrual Bleeding?

Clinically Speaking: What to Ask Your Healthcare Provider If You Think You Have Uterine Fibroids

Clinically Speaking: What Are My Options Following a Uterine Fibroid Diagnosis?

Clinically Speaking: Talking to Patients About Uterine Fibroids

Video Story: All About Periods – Nkem Osian Fibroids Journey

The White Dress Project: Photovoice Storytelling Campaign

Conversación sobre la salud: Qué preguntas puede hacer a su médico si piensa que tiene fibromas uterinos

Conversación sobre la salud: ¿Cuáles son mis opciones después de una diagnosis de fibromas?

Conversación sobre la salud: Conversaciones con pacientes sobre fibromas uterinos

Living with Fibroids Videos

Fibroids Resource List

Fibroids are abnormal growths that develop in or on a woman’s uterus. In some cases, no signs or symptoms are present, but if the tumors become extremely enlarged, women can experience severe abdominal pain and heavy periods. Although the cause of fibroids is still unknown, up to 80% of women experience fibroids by the age of 50 and African American women suffer from fibroids 2 to 3 times more than white women at a younger age and often more severely. For more information on fibroids, contact your healthcare provider and visit the resources provided below.

The White Dress Project and HealthyWomen Resources

The White Dress ProjectThe White Dress Project: We CAN Wear White – YouTubeFibroidsWhat to Know About Uterine FibroidsThe Double Whammy for Black Women With FibroidsI Thought My Heavy Bleeding Was Normal — Until It Almost Killed MeAfter My Hysterectomy, I’m Living My Best LifeHealthyWomen Statement on Uterine Fibroid Research and Education ActLiving with Fibroids Videos

Additional Resources

Fibroids: Types, Causes, and Symptoms ( in Black women: Rates, impact, and more ( Fibroids: Q&A With an Expert | Johns Hopkins MedicineFind Healthcare Providers: Compare Care Near You | MedicareInsurance Coverage | USA Fibroid Centers